As part of its ongoing programmatic efforts to increase the flow of participants into clinical studies that urgently need them, The Michael J. Fox Foundation for Parkinson’s Research (MJFF) launched the “Parkinson’s Clinical Trial Companion” educational suite. This new resource, available at www.michaeljfox.org/PDcompanion, educates patients and families about the power of participating in research and furnishes teams running clinical studies with high-quality tools to recruit and retain volunteers.
Clinical trials are the final, vital step in developing new therapies for Parkinson’s disease (PD). Unfortunately, across all research, 85 percent of trials face delays and 30 percent never get off the ground due to a lack of volunteers. In a 2014 Harris poll conducted on behalf of MJFF, only 36 percent of Parkinson’s patients reported feeling informed about opportunities to participate in clinical research.
“Patient participation in research is key to driving scientific breakthroughs and cures. Yet clinical trials routinely encounter roadblocks that slow progress, including a chronic shortage of volunteers,” said MJFF CEO Todd Sherer, PhD. “We believe it is our obligation to foster partnerships among patients, families and researchers to bring more people with the disease into Parkinson’s clinical trials by educating potential study participants and supporting trial teams’ recruitment efforts.”
Read more at Business Insider.